Welcome to PXE International

A message from PXE International

Welcome to the PXE International Patient Registry, the best way to provide your experiences for studying Pseudoxanthoma Elasticum.

About General PXE Study

Basic health characteristics for those with PXE

After registration, you will be taken to the General PXE Study study in Luna.

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You control who accesses and uses your information based on the studies you join and the permissions you grant. Luna does not sell information collected on the platform.

While we welcome members from around the world to share data for health research, our securities offering qualification is only available to residents of the United States - non-US residents cannot claim ownership of shares in Luna. We intend to extend this offering to residents of other countries as we complete qualification based on each country's securities regulations.