Welcome to Regroupement québécois des maladies orphelines / Quebec Coalition of Orphan Disorders

A message from Regroupement québécois des maladies orphelines / Quebec Coalition of Orphan Disorders


Bienvenue sur la plateforme du « Registre maladies rares Québec » du Regroupement québécois des maladies orphelines. Votre participation fera progresser les connaissances sur votre maladie rare. Le registre du RQMO est ouvert à tous les patients québécois touchés par les maladies rares et leurs proches aidants. Des communautés de maladies rares spécifiques seront aussi créées auxquelles vous pourrez vous joindre. Welcome to the Coalition of Orphan Diseases' (RQMO) "Quebec Rare Disease Registry" platform. Your participation will advance knowledge about your rare disease. The RQMO registry is open to all Quebec patients affected by rare diseases and their caregivers. Specific rare disease communities will also be created which you will be able to join.

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